Manual of Biobank Quality Management, Matera-Witkiewicz, Agnieszka Glenska-Olender, Joanna Uhrynowska-Tyszkiewicz, Izabela Witon, Malgorzata Zagorska, Karolina Ferdyn, Katarzyna Laskowski, Michal Sitek, Patrycja Marciniak, Blazej Pawlikowski, Jakub
Автор: Stranger Название: Principles and Practice in Biobank Governance ISBN: 1138276936 ISBN-13(EAN): 9781138276932 Издательство: Taylor&Francis Рейтинг: Цена: 8420.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Автор: Stranger, Mark Название: Principles and Practice in Biobank Governance ISBN: 0754678253 ISBN-13(EAN): 9780754678250 Издательство: Taylor&Francis Рейтинг: Цена: 24499.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Автор: Chen Zhengming Название: Population Biobank Studies: A Practical Guide ISBN: 9811576688 ISBN-13(EAN): 9789811576683 Издательство: Springer Рейтинг: Цена: 12196.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:
1 Epidemiological studies: an overview of principles and methods.- 2 Design, implementation and management of biobank studies.- 3 Planning, organisation and management of fieldwork in biobank studies.- 4 Collection, processing, and management of biological samples in biobank studies.- 5 Monitoring long-term health outcomes of biobank participants by record linkages.- 6 Verification and adjudication of health outcomes in prospective cohort studies.- 7 Development and application of IT systems in biobank studies.- 8 Management and curation of multi-dimensional data in biobank studies.
Описание: This doctoral thesis reports on an innovative data repository offering adaptive metadata management to maximise information sharing and comprehension in multidisciplinary and geographically distributed collaborations. It approaches metadata as a fluid, loosely structured and dynamical process rather than a fixed product, and describes the development of a novel data management platform based on a schemaless JSON data model, which represents the first fully JSON-based metadata repository designed for the biomedical sciences. Results obtained in various application scenarios (e.g. integrated biobanking, functional genomics and computational neuroscience) and corresponding performance tests are reported on in detail. Last but not least, the book offers a systematic overview of data platforms commonly used in the biomedical sciences, together with a fresh perspective on the role of and tools for data sharing and heterogeneous data integration in contemporary biomedical research.
Автор: Deborah Mascalzoni Название: Ethics, Law and Governance of Biobanking ISBN: 940179572X ISBN-13(EAN): 9789401795722 Издательство: Springer Рейтинг: Цена: 14635.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.
Автор: Zawati, Ma`n H. Название: Reciprocity In Population Biobanks ISBN: 0323912869 ISBN-13(EAN): 9780323912860 Издательство: Elsevier Science Рейтинг: Цена: 17180.00 р. Наличие на складе: Нет в наличии.
Описание: Reminded by the Instruments offers an in-depth look at the work of post-war avant-garde pianist and composer David Tudor. Examining not only Tudor`s pioneering work as a composer-performer but also his homemade modular instruments that radically altered electronic music, author You Nakai illuminates our understanding of the means of sound production in experimental music.
Автор: Jennifer C. Moore, Michael H. Sheldon, Ronald P. Hart Название: Biobanking in the Stem Cell Era: A Technical and Operational Guide ISBN: 1615044728 ISBN-13(EAN): 9781615044726 Издательство: Mare Nostrum (Eurospan) Рейтинг: Цена: 6237.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Working with the National Institute of Mental Health (NIMH), the Rutgers Cell and DNA Repository (RUCDR) has begun banking iPSC source cells and converting those source cells into iPSC for distribution to the scientific community. This book provides detailed protocols for reprogramming either fibroblasts with retroviral vectors or cryopreserved lymphocytes with Sendai viral vectors.
Автор: Biller-Andorno Название: Ethical Issues in Governing Biobanks ISBN: 1138262447 ISBN-13(EAN): 9781138262447 Издательство: Taylor&Francis Рейтинг: Цена: 8420.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.
Автор: Gottweis, Herbert Название: Biobanks ISBN: 041542738X ISBN-13(EAN): 9780415427388 Издательство: Taylor&Francis Рейтинг: Цена: 6889.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: This book brings together leading experts in the field of conservation to provide a comprehensive overview of current best practices, summarise technological advancements, and present a framework for facilitating the integration of reproductive technologies and biobanking into conservation breeding programs for threatened amphibians.
Описание: Part I Setting the scene.- Introduction: Individual rights, the public interest and biobank research 4000 (8).- Genetic data and privacy protection.- Part II GDPR and European responses.- Biobank governance and the impact of the GDPR on the regulation of biobank research.- Controller' and processor's responsibilities in biobank research under GDPR.- Individual rights in biobank research under GDPR.- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research.- A Pan-European analysis of Article 89 implementation and national biobank research regulations.- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations.- Part III National insights in biobank regulatory frameworks.- Selected 10-15 countries for reports: Germany.- Greece.- France.- Finland.- Sweden.- United Kingdom.- Part IV Conclusions.- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward.
Название: Biobanking ISBN: 1493989332 ISBN-13(EAN): 9781493989331 Издательство: Springer Рейтинг: Цена: 20733.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:
This volume not only discusses various common biobanking topics, it also delves into less-discussed subjects such as what is needed to start a biobank, training of new biobanking personnel, and ethnic representation in biospecimen research. Other chapters in this book span practical topics including: disaster prevention and recovery; information technology; flora and fauna preservation including zoological fluid specimen photography; surgical and autopsy biobanking; biobanking of bodily fluids; biosafety; cutting frozen sections; immunohistochemistry; nucleic acid extraction; and biospecimen shipping. Written in the highly successful Methods in Molecular Biology series format, chapters include introductions to their respective topics, lists of the necessary materials and reagents, step-by-step, readily reproducible laboratory protocols, and tips on troubleshooting and avoiding known pitfalls.
Unique and comprehensive, Biobanking: Methods and Protocols is a valuable resource for novice and practicing biobankers, and for end-user researchers. This book aims to bring new insight into the field and expand on current biomedical biobanking studies.
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