Principles and Practice in Biobank Governance, Stranger, Mark
Автор: Stranger Название: Principles and Practice in Biobank Governance ISBN: 1138276936 ISBN-13(EAN): 9781138276932 Издательство: Taylor&Francis Рейтинг: Цена: 8420.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Автор: Deborah Mascalzoni Название: Ethics, Law and Governance of Biobanking ISBN: 940179572X ISBN-13(EAN): 9789401795722 Издательство: Springer Рейтинг: Цена: 14635.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.
Автор: Colcelli Название: GDPR Requirements for Biobanking Activities Across Europe ISBN: 3031429435 ISBN-13(EAN): 9783031429439 Издательство: Springer Рейтинг: Цена: 26832.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: The book deals with the effective operation of the rules related to biomedical research and pays attention to the activities of the national legislatures of the 27 Member States in the field of scientific research. This multilevel system has an impact on biobanking activity. The book answers questions realized by operators on the main biobanks around the EU in the field of GDPR. The authors and editors used the questions born from brainstorming among members of the Association European, Middle East & Africa for Biopreservation and Biobanking (ESBB) to offer to the operators in biobanking activity and researchers quickly answer to their daily questions, but with authors highest quality. Further the book provides a comprehensive review of the rapidly expanding field of biobanking. It provides researchers and scholars working on biobanking and bio-sharing and more in general in the university hospitals and clinical trial consortiums, and companies, biomedical researchers, but also jurists and the professionals (in particular judges, lawyers, officers) an instrument rigorous but easy to use of the GDPR in the case of biobanking activities. The book identifies a methodological path to tackle the legal or ethical problem on a specific scientific-technological to verify existing solutions and give ideas for future applications. The importance of the legal solution influences the implementation of the development of the biobanking activity service itself.
Описание: Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.
Автор: Kaye, Jane Название: Governing Biobanks ISBN: 184113905X ISBN-13(EAN): 9781841139050 Издательство: Hart Publishing Рейтинг: Цена: 15840.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Using interview data this book provides unique insights and makes recommendations about the governance of biobanking in the future.
Автор: T. Brandsen; W. Trommel; B. Verschuere Название: Manufacturing Civil Society ISBN: 1349468916 ISBN-13(EAN): 9781349468911 Издательство: Springer Рейтинг: Цена: 9756.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: "Faced with declining social cohesion, more and more governments are trying to revitalise society by attempting to reconstruct local communities, civil society and citizenship. One way to do this is to share public responsibilities with organized citizens and third sector organisations. As a result, relationships with citizens, communities and third sector organisations are increasingly brought within the realm of public management, subject to accountability procedures, embedded in hierarchical structures, included in arenas for competition and contracting. This volume examines the emergence of this new type of governance, exploring the dynamics, effectiveness and appropriateness of this governmental response to the fragmentation of modern social life. "--
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