Описание: Part I Setting the scene.- Introduction: Individual rights, the public interest and biobank research 4000 (8).- Genetic data and privacy protection.- Part II GDPR and European responses.- Biobank governance and the impact of the GDPR on the regulation of biobank research.- Controller' and processor's responsibilities in biobank research under GDPR.- Individual rights in biobank research under GDPR.- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research.- A Pan-European analysis of Article 89 implementation and national biobank research regulations.- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations.- Part III National insights in biobank regulatory frameworks.- Selected 10-15 countries for reports: Germany.- Greece.- France.- Finland.- Sweden.- United Kingdom.- Part IV Conclusions.- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward.
2. Biobank design and infrastructure: Biobank Engineering
3. Biocomputing for biobanks: Workflow and information management systems for biobanks
4. Tissue Preservation and Factors Affecting Tissue Quality
5. The use of paraffin blocks/pathology archives for clinical biobanking
6. Biobanking Best Practices and Publication Standards
7. Ethical challenges for biobanks - two sides of the coin
8. Ten years of experience in training Biobank Managers at Master level in France.
9. National biobank networking: The case of Spain
10. Public-private Partnership in Biobanking: The Model of the BBMRI-ERIC Expert Centres
11. The future of biobanking: meeting tomorrow's challenges
Автор: Karimi-Busheri Feridoun, Weinfeld Michael Название: Biobanking and Cryopreservation of Stem Cells ISBN: 3319832980 ISBN-13(EAN): 9783319832982 Издательство: Springer Рейтинг: Цена: 26194.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: This book will cover a wide variety of subjects from across the future biobanking spectrum including scientific strategies, personalized medicine, regenerative medicine and stem cell challenges, disease surveillance, population genetics and innovative methods of biobanking.
Автор: Feridoun Karimi-Busheri Название: Biobanking in the 21st Century ISBN: 3319371436 ISBN-13(EAN): 9783319371436 Издательство: Springer Рейтинг: Цена: 13677.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Biobanking, an emerging field supported by academia, industry and health administrators alike, is distinctly different today from the practice that once defined it. The book outlines the experiences of developing modern Biobanking repositories in different countries, whilst covering specific topics regarding the many aspects of Biobanking.
Автор: Feridoun Karimi-Busheri; Michael Weinfeld Название: Biobanking and Cryopreservation of Stem Cells ISBN: 3319454552 ISBN-13(EAN): 9783319454559 Издательство: Springer Рейтинг: Цена: 19377.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Biobanking is considered to be one of the ten ideas changing the world with an estimated value of $45 billion by 2025. Despite the challenges, as the climate for innovation in the biobanking industry continues to flourish around the world, it is certain that amazing discoveries will emerge from this large-scale method of preserving and accessing human samples; biobanking is no longer just a place for collecting and storing samples. This book will cover a wide variety of subjects from across the future biobanking spectrum including scientific strategies, personalized medicine, regenerative medicine and stem cell challenges, disease surveillance, population genetics and innovative methods of biobanking.
Описание: Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.
Автор: Deborah Mascalzoni Название: Ethics, Law and Governance of Biobanking ISBN: 940179572X ISBN-13(EAN): 9789401795722 Издательство: Springer Рейтинг: Цена: 14635.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.
Автор: Herod, F. G. Название: Health Data Privacy under the GDPR ISBN: 0367632608 ISBN-13(EAN): 9780367632601 Издательство: Taylor&Francis Рейтинг: Цена: 6430.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: This book examines health and big data questions in light of the GDPR and the EU`s general data privacy legal framework. It addresses the opportunities and challenges of big health data and considers the GDPR`s responses to these from a variety of disciplines and perspectives.
Название: Big Health Data and the GDPR ISBN: 0367077140 ISBN-13(EAN): 9780367077143 Издательство: Taylor&Francis Рейтинг: Цена: 23734.00 р. Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: This book examines health and big data questions in light of the GDPR and the EU`s general data privacy legal framework. It addresses the opportunities and challenges of big health data and considers the GDPR`s responses to these from a variety of disciplines and perspectives.
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